Huntington’s Disease (HD) is a progressive, degenerative condition that requires increasing levels of care, especially in its mid to late stages. Many Canadians living with Huntington’s eventually need to move into retirement or long-term care homes, where they can receive the supervision and medical assistance they need.
1. Government Support for Huntington’s PatientsIn Canada, health and long-term care are administered at the provincial level. Most provinces provide publicly funded long-term care homes that offer full-time nursing and personal support services.
While medical services are funded, residents are usually required to pay for accommodation and meals, based on income.
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To access a government-funded facility, families must apply through their provincial health authority. In Ontario, this is done through Home and Community Care Support Services (HCCSS).
Patients with Huntington’s Disease often qualify for additional provincial or federal financial assistance, especially if they are under 65 and unable to work.
Here’s a comparison of common support programs:
| Program | Eligibility | Support Offered |
|---|---|---|
| Ontario Disability Support Program (ODSP) | Under 65, diagnosed with a long-term disability | Monthly payments, drug coverage, basic needs assistance |
| Canada Pension Plan Disability (CPP-D) | Under 65, contributed to CPP, unable to work | Monthly federal income support |
| Old Age Security (OAS) & Guaranteed Income Supplement (GIS) | 65+, low-income seniors | Monthly pension and income supplements |
| Home and Community Care Subsidies | All ages, based on care needs | Government coverage for LTC services and nursing |
| Registered Disability Savings Plan (RDSP) | Under 60, eligible for disability tax credit | Long-term savings plan with government grants |
While public long-term care homes offer subsidized rates, many families explore private retirement residences that provide enhanced services, quicker access, or a more personalized environment. These may include:
No. OHIP covers medical services but not accommodation in private retirement homes. However, public long-term care homes are subsidized for eligible residents.
Yes. Programs like ODSP and CPP Disability provide monthly income support and access to drug coverage and assistive services.
Contact Home and Community Care Support Services (HCCSS) to get assessed for eligibility and placement in a subsidized facility.
Yes. Families can claim medical expense tax credits, disability tax credits, and caregiver tax credits through the Canada Revenue Agency (CRA).
You may consider private retirement homes while waiting for a public placement. Some nonprofits also offer emergency financial assistance for temporary care.
Caring for a loved one with Huntington’s Disease in a retirement or long-term care home can be emotionally and financially challenging. Thankfully, Canada offers a strong network of public support programs and private optionsto help families navigate the cost of care.
From government subsidies and disability benefits to private insurance and charitable resources, there are pathways to ensure that individuals with Huntington’s receive the safe, dignified, and compassionate care they deserve.
Don't hesitate to contact us at 343 309 5289. We can help you choose the right establishment for you and assist you in your search.
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